Our parent support group main vehicle is a closed Facebook group for families and carers – email us at admin@angelman.ie or DM us on Facebook to join. This invaluable network can help with day to day questions and support, also tapping into the wider AS community abroad. We also have a more public open group for sharing of general information.
Find us on Facebook: www.facebook.com/angelmansyndromeireland
Benefits & entitlements.
With kind permission of Autism Ireland this great resource on what practical help and resources may be available from nappies to respite grants .www.autismireland.ie – link to page on Benefits & entitlements.
Support.
The Carers Association supports family carers in the home. www.carersireland.com
Jack & Jill Foundation provides nursing care and support for children with severe neurological developmental issues as well as offering some respite for parents and families in home support – www.jackandjill.ie
Camphill communities – http://www.camphill-uk-ireland.net/Camphill Communities of Ireland is part of an international charitable trust working with people with intellectual disabilities and other kinds of special needs. In Camphill our residents share their home, spiritual and working lives with those who are motivated to meet others as individuals needing support and recognition for what they are, and not as carer and cared for in the conventional sense. Most of the people providing support to those with disabilities are volunteers, coming locally or from abroad. Camphill is a way of life, where each person according to ability contributes what they can towards the well-being of the other.
Epilepsy
For information on seizures epilepsy and support groups see Epilepsy Ireland www.epilepsy.ie
Other national and international organisations
The Genetic and Rare Disorders Organisation (GRDO) is an Irish non governmental organisation acting as a national alliance for voluntary groups representing the views and concerns of people affected by or at risk of developing genetic or other rare disorders. ASI are members of GRDO. ASI are members of GRDO. www.grdo.ie
ASSERT (UK ) www.angelmanuk.org
ASF (USA) www.angelman.org
FAST (USA ) www.cureangelman.org
