We are working on our the new website! Until then please excuse our appearance 🙂
Run with ASI – Clontarf Half Marathon Nov 2024
Join Us for the Clontarf Half Marathon & 5 Mile Run in Support of Angelman Syndrome Ireland!
This November, we invite families and friends to participate in a fundraising event that brings us together for a great cause. Angelman Syndrome Ireland will be participating in the Clontarf Half Marathon and 5 Mile Run, and we need your support!
Angelman Syndrome is a complex genetic disorder that affects many children and their families. By participating in this event, you can help raise awareness and funds to support vital research and resources for those affected by this condition.
Event Link: https://eventmaster.ie/fundraising/vcampaign/JDBC5MAHMN2024FC-ASI
How You Can Help:
- Run or Walk: Sign up for the half marathon or 5-mile run. Whether you’re a seasoned runner or just want to enjoy a leisurely stroll, every step counts!
- Fundraise: Create your own fundraising page and share it with friends and family. Every donation goes a long way in supporting Angelman Syndrome Ireland and the families we serve.
- Cheer Us On: If you can’t participate, come out and cheer on our team! Your support means the world to us and helps raise spirits along the route.
Together, we can make a difference in the lives of those impacted by Angelman Syndrome. Let’s lace up our running shoes, rally our families, and show our support this November. For more information on registration and fundraising, please visit [insert link] or contact us at [insert contact details].
Thank you for being a part of this journey!
In the News: Kerry community walk a great success!
This weekends Irish Independent featured one of our wonderful Angelman families from Kerry. Little RóRó inspired over 250 people to attend a greenway walk in honour of her birthday
ASI are so grateful to the Morrisey-Walsh family and the people of Kerry for their support
Summer Picnic 2024
Join us at Clonfert Farm & Mini-zoo this July 21st at 12pm for a family picnic. There’s plenty to keep us entertained! We have a small private hire room which opens out to a picnic and playground area. There’s a large petting farm, bouncing castle, a cafe restaurant and soft-play center on-site.
Book your seat on zoom workshop.
Monday 11th October 7.30pm, Challenging Behaviour Specialist John Curran will be joining us.
€3K Access to Angelman Grant awarded.
We are delighted to have been awarded €3K today December 16th from the RTE Comic relief grant fund in conjunction with Community Foundation. As part of our Access to Angelman project we will be working to host virtual meeting and meetups in the coming months. More details to follow.
Entitlements for families
Booklet for families explaining entitlements for families. Kindly reproduced here with permission from Financialwellbeing.ie