Angelman Syndrome Ireland was founded in 2011 by two parents Sara Hetherington and Sarah Roarty.
The current day to day running of the charity is overseen by Crystal McLoughlin and Anna Walsh, who are parents to young children with Angelman Syndrome. We are backed and supported by a voluntary advisory board, recognised in their respective fields of paediatrics, clinical trials and finance and charity governance.
- Dr. Kevin Dunne, Consultant Paediatrician
- Robert Moynihan, Finance and Governance.
- Annette Kent, Clinical Research
- Anna Walsh, Secretary & AS parent (anna@angelman.ie)
- Crystal McLoughlin, Vice-Chair & AS parent (crystal@angelman.ie)
Board Bios
Dr. Kevin Dunne MB, MRCP, DCH:
Dr Dunne is a Consultant Paediatrician in UCHG having qualified from University of CambridgeUK in 1975 and practised as junior doctor in Ireland and UK. First Professor McClancy research fellow in Rotunda studying babies with “Near-Miss SIDS”. Dr Dunne has extensive experience in developmental medicine in Scotland and was Consultant Paediatrician in Raeden Centre Aberdeen and Ipswich before his present post in Galway 1991. He has over 20 years experience in diagnosing Angelman Syndrome. Dr Dunne was involved in setting up the Western Cerebral Palsy Register and is a Clinical Lecturer in National University of Ireland, Galway. He also serves as Clinical Director of Enable Ireland, Galway whose mission is to work in partnership with service users to achieve maximum independence, choice and inclusion in their communities.
Robert Moynihan
Roberts core area of specialisation is financial regulation and compliance across all areas of financial services. With over 25 years experience of financial services management principally in regulation and compliance Robert brings an in-depth knowledge of both domestic and international compliance. Since 2005 he has been specialising in the Credit union Sector. He was appointed by the Minister of Finance to the Financial Services Industry Consultative Panel from 2004 to 2008 and to the Commission of Credit Unions in June 2011. Robert is a chartered accountant and holds an MSc in Financial Management and Compliance Management.
Anna Walsh
Anna is a Clinical Trial Project Manager in academic research. Anna has a BSc in Pharmaceutical Science and has 14 years experience in clinical trials in both industry and academic research, ranging from early Phase I through to Phase II and III studies. Anna and her husband have two daughters, their youngest Róisín, aged 3, lives with Angelman Syndrome.
Crystal McLoughlin
Crystal has over 15 years experience in software engineering leadership managing global delivery teams. In 2024 she will commence carers leave to allow her to focus on her son Tomás’ therapy & educational needs. Crystal is based in Dublin and is mother of Tomás, who has Angelman Syndrome