Honouree Patron, President Michael D. Higgins
Angelman Syndrome Ireland, is a not for profit charity established in 2011 to provide support and information about this rare neuro-genetic disorder of chromosome 15.
ASI is run by parents for parents and families affected by the condition. We strive to raise awareness, provide resources, and foster community. We organise events, offer information on available services, and promote and fund basic research. Through advocacy and support, Angelman Syndrome Ireland aims to enhance the quality of life for individuals with the condition and empower their families.
Honouree Patron, President Michael D. Higgins, has been supporting the development of this new charity.
CHY no 21101 –
